4 trips to Boston the past 4 days

We've been up to Boston the last four business days for appointments.  The last three were for a study to see how the flow of Ceil's spinal fluid is circulating.  This is what last week's surgery was for.  She had a couple of new valves put into the shunt in her head along with a new reservoir that will accept a needle that will deliver the treatments.


I was asked today if the Denali had auto-pilot to get us there and we've done it so many times now that I kind of lose track of driving the MA pike, so it has become part of my sub-conscious I suppose.  Ceil is able to sleep during the trips which is good based on what time we've been waking up to make the drive.  I also pointed out to Ceil that the valet guys seem to know us now and I've definitely got accustomed to city driving!


Ceil continues to be tired from all of this but we have got to do whatever it takes to get my girl better.


This weekend is the big Pasta Supper that the Berlin Lions are throwing to support the Ava'sMom Relay for Life team.  The support has been staggering!  We look forward to a great night of seeing everyone and to raising some money for the continued search for a cure for cancer. 


If you haven't got tickets yet, I would get them soon as the number of tickets sold is incredible.  There will be some sold at the door, but they will shut it down when they think they will run out of food.  Tickets can be bought thru Friday online at www.berlin-littleleague.com under the "association" tab - Berlin Lions Pasta Supper.


Also, a big shout out to Deb Carson, the Powerhouse Gym and those "Warriors" who showed up to the Warrior Ride this past Saturday.  A great event with a lot of people pushing it thinking of Ceil!


Treatments look like they start next week.  I'll let you know once I have a more concrete answer.

Thanks everyone.


Vin