The Battle Continues

I just wanted to update everyone with what is going on with Ceil.  Due to her getting week in the legs and having a tingling sensation in her legs, the doctor suggested that we get an MRI done on Ceil's lower back.  We did this last week and were called to let us know that she has some disease that spread to her lower spine.  We started radiation again this Wednesday and she'll be going for the next month over to UConn.  We worked it into the schedule where we are able to get the kids off on the school bus and head over there.  What I have found is when you have something going on like this, structure is the key to keeping your sanity.


We are also going to meeting with Ceil's Doc to look at a clinical trial up at Dana Farber in Boston.  With Hartford Hospital now being part of the Sloan Kettering system, we are also seeing what they have available.


The kids are doing good.  From our first bout three years ago, I was told that kids are resilient - there isn't a question in my mind that this is true!


Everyone always asks me if there is anything they can do for us so I will put this out there - the Ava's Mom team for the Relay for Life will be on the Relay website  today.  Please help support the team so we can raise money for the fight against Cancer.  The Relay for Life is the non-profit that Ceil loves being a part of.  This year, Olivia has asked that she be the captain of the team.  Like I said, kid's are resilient and Olivia wants to make this year's Relay the best ever so she wants to get involved in support of her Mom.


Here's the link - you can donate, join, buy a luminaria to remember or celebrate someone special.  Support or Join Ava'sMom 2014 link


One other request - and this idea came from Auntie Carla -

Hello Family and Friends,

I am reaching out to you today to let you know of a very special day coming up; Olivia's 12th Birthday on March 8th.  I have a simple request to fill her mailbox with birthday wishes.  Let's let her know she is in our thoughts, especially on her Birthday!  Can we spread the word about a special girls' special day? I think we can!

  PLEASE NO GIFTS; just a sincere wish for a Happy Birthday!

Feel free to make the card from scratch, as big or little or as sparkly as you want, as we all know Olivia is a Sparkly young lady!

You can mail her card to her home address...

I have set up an email address to send her virtual birthday wishes at oliviasbirthdaywish@gmail.com

or there will be a "mailbox" at Simeone's Mobil, 21 Chamberlain Hwy, Berlin to drop cards off as well.

Please take a few minutes to send a birthday wish to Olivia. 

P. S.  Ava's birthday is coming up too at the end of March, so stay tuned for another birthday wish request :)

With that, your prayers are appreciated and we'll keep fighting the fight on our end.  Remember, only you get to decide if it's going to be a Positive or Negative day - Choose Positive!

Vin